We are delighted to announce that the recordings of the Young People and Adolescents with MPNs virtual forum are now available to view. The forum was a collaborative effort with our colleagues in Vivre avec une NMP, using AI-generated avatars for simultaneous transmission of the clinicians’ presentations in French, Spanish and English, alongside other sessions conducted in English. You can now view three separate recordings in each language, plus an extra video featuring the clinicians’ presentations only, in Chinese.
Programme:
- Welcome – Nona Baker, Co-chair MPN Voice and Karin Tourmente-Leroux, Présidente de Vivre avec une NMP
- Introduction and Agenda – Prof Claire Harrison, Guy’s & St Thomas’ Hospital
- An introduction to MPN and genetics – Prof Jean-Jacques Kiladjian, Saint Louis Hospital, Paris
- What is known about young people and MPNs – Prof Claire Harrison, Guy’s and St Thomas’ Hospital, London
- Information about stem cell transplantation and a look to the future MPN therapies – Dr Juan Carlos Hernández-Boluda, Hospital Clínico of Valencia
- Parent and patient story – Pam and Alice
- Panel Question & Answer session
INFORMATION CONTAINED IN THE VIDEOS WAS CORRECT AS OF 21 JAN 2025
We extend our thanks to everyone involved in this forum for their invaluable support in making this event possible. Additionally, we express our gratitude to all the speakers for their contributions, which enriched the discussions and insights shared during the forum. We hope that you enjoy watching the forum videos, if you would like to send us any comments/feedback please email info@mpnvoice.org.uk
Donate to MPN Voice – MPN Voice would not exist without fundraising, donations and grants, we are kindly asking everyone to be as generous as they can to help us support our ongoing projects, including the virtual forums, supporting the MPN patient and healthcare communities. We would be very grateful for your support with a donation to MPN Voice which you can make via the MPN Voice JustGiving page, thank you.
