Exciting news! MPN Voice is launching a young patient network that aims to bring together and support young people with MPNs.
We know that being diagnosed at an early age can bring a unique set of questions, challenges, concerns, and experiences. That’s why we’re creating a space where young people can meet and connect with like-minded others.
Throughout the year, we’ll be hosting a series of virtual meetings where young patients can chat with each other, swap stories and concerns, and learn from leading health professionals. We’ll also be offering a Facebook group to facilitate conversation specifically among young patients.
Our first meeting will be on Sun 2nd April at 4 pm BST. This is open to all young patients (located anywhere in the world) aged under 40.
If you’d like to attend, please email info@mpnvoice.org.uk to register for a place. Please include your age, location, and MPN diagnosis.
The draft agenda for the first meeting is:
- Welcome and introductions
- Aims and ambitions of young patient network
- Gather ideas from patients on what they’d like from the network/their support needs
- Facebook group
- Breakout groups by age
- Volunteers for steering committee
- Close
We look forward to seeing you at this first meeting.
And don’t forget to have a look at the Young People and MPNs blogs, a series of monthly blogs written by Alice who focusses on a different topic each month, including Q&As with patients and healthcare professionals.
