An extra vlocgast this month with Nona and Orlando talking about the MyMPNVoice App which has been developed in partnership with Sanius Health. The My MPN Voice App is designed to allow people living with MPNs to be able to capture their quality of life (QoL) data on a daily, weekly or monthly basis, to look at how they are living with their MPN.
Orlando went on to tell Nona that the My MPN Voice app is currently being tested by the MPN Voice team and healthcare professionals, and the plan is to have it available, pre-holiday, for patients to engage with it. Each user will have a FDA approved wearable device linked to the app, which captures data about their sleep, blood oxygen levels, heart rate, temperature and lots more, and can link in their medical records, allowing patients to engage with their own health data in a different way, and to communicate and share this data with their healthcare teams.
The My MPN Voice app will allow you to track your symptoms, receive MPN Voice new and updates, connect with the MPN Voice community and be part of the research, if you would like to register your interest in the My MPN Voice app, click here and follow the QR code to sign-up, or you can email info@mpnvoice.org.uk for more information.
We would like to thank Orlando for taking part in this conversation with Nona. MPN Voice would also like to thank him and all the team at Sanius Health for their enthusiasm, help and support for this amazing project.
Click here to view the vlogcast.
We hope that you enjoyed this conversation, please send feedback and any questions to info@mpnvoice.org.uk. If you have any suggestions for future conversations please let us know.
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