Are you aged 18-39 and living with a MPN? Join our study to share your experiences and help shape the future of support for young patients.
We would be delighted if you would consider taking part in a study focusing specifically on young people’s experiences of living with a diagnosis of MPN. Very few studies have specifically focused on young people with MPN and it is hoped this study will provide important information to help support young people who receive the diagnosis. The study is being conducted at the University of Limerick and Mercy University Hospital and is open to ALL 18-39 year olds with a diagnosis of MPN. It involves answering some questions (via the QR code link below) and there is an option to speak more about your experiences in a 1:1 interview. The QR code takes you to an information leaflet about the study and when you consent it will take you to the questionnaire. The survey is anonymous and ethical approval has been granted by the University of Limerick.
We hope to share the findings with MPN Voice.
Thank you for considering to take part. Further questions please contact johnston.kate@ul.ie
