Fundraising Heroes

I’m Jonathan and my daughter Francesca has an MPN. I’d never heard of it until her diagnosis and hearing the word cancer is one of the hardest things for any…

My name is Jamie White and I ran the London marathon to fundraise for MPN Voice. Why did you decide to fundraise for MPN Voice? After my diagnosis I found…

  My name is Andrew Livingstone, I was diagnosed with ET after a rollercoaster journey of mostly negative emotions, uncertainty and a lot of tests before finally getting a diagnosis…

As a young person living with an MPN I hope that my story will provide comfort to other young people with MPNs to know that they are not alone and…

“My Mum is my inspiration. I feel helpless watching her struggle with her condition and realised fundraising was my way of supporting the vital research required to find potential cures…

  “My wife’s illness inspired me to become a fundraiser myself, it is not something I have ever done before, but I would definitely do it again.” My wife Annette…

17 March 2016 “Hello, my name is Helen Bass and I live in Hertford with my partner. Having played tennis and football at county level for many years, I then…

15 March 2016 “After my fiancé Lauren was diagnosed with Essential Thrombocythaemia in January 2014 at the age of 28, she went to MPN Voice for support and guidance. I…

15 March 2016 “Hello, my name is James and I live in Winchester with my beautiful wife Sarah, who is just about to have our first baby….. middle of April!!!…

15 March 2016 The 2015 Virgin London Marathon weekend was poignant for me, I spent most of the weekend reading the information about ET on the MPN Voice website, I…

09 November 2015   Amanda, 33 and a mother of three children was diagnosed with ET in 2010 and is taking Interferon. Amanda suffered a TIA (mini stroke) in 2014…

09 November 2015 Karen, who has PV, is a frequent MPN Voice supporter and fundraiser. As part of her get fitter campaign she has been training hard since April, putting…

09 November 2015 After many years with Polycythaemia Vera, I gradually became very ill just before Christmas 2010 and was referred to Guy’s Hospital in London for more detailed tests…

21 June 2015   David was diagnosed with ET a few years ago and decided he wanted to get fit and needed a target and decided this would be ‘The…

18 June 2015   Laura and Peter decided to accept our challenge and as Laura put it, ‘threw themselves off’ the Golden Jubilee Wing of King’s College Hospital London. They…

16 June 2015   Ruby’s Auntie Rachael has essential thrombocythaemia(ET) and Ruby wanted to do something to show her support and decided to do a bike ride to raise funds…

04 June 2015   Gerry Burns was diagnosed with PV in 2006 and was 53 when he did the run. He writes ‘I was going to do something for Cancer…

09 April 2015   Kayleigh aged 21 was heartbroken when her aunt was recently diagnosed with polycythaemia vera (PV). Kayleigh decided that she wanted to support her aunt as much…

17 July 2014   Paddy ran the Silverstone Half Marathon for his partner Karen. He says ‘My training was a mission in itself, I am an evening runner and usually…

17 July 2014   In 2013 Michelle was diagnosed with a liver disease caused by an underlying myeloproliferative neoplasm, polycythaemia vera (PV Michelle ran the Adidas Silverstone Half Marathon and…

30 April 2014   John was diagnosed with ET in 2011 and decided in 2014 to try and get more active by training for The St Albans Half Marathon which…

26 April 2014   Giovanni was one of the many supporters who contacted the MPN Voice Fundraising Team to apply for one of our guaranteed London Marathon places. Unfortunately he…