We need your help – will you share your story on our website? We are currently updating and reviewing the information on our website. The real stories shared by the MPN Community are an important section where new patients and their families can be informed and encouraged by stories of how different people are living…
We would like to thank everyone who completed the MPN COVID-19 vaccination survey in March. The survey was conducted by the teams at Guy’s & St Thomas’ Hospital to assess the various aspects regarding COVID vaccines in people with MPNs, including their opinions and experiences regarding vaccination which is of major interest to aid future…
Researchers at Guy’s and St Thomas’ NHS Foundation Trust are carrying out research to investigate how patients with MPN and also CML respond to vaccination against Covid-19. They would like to recruit patients with a known MPN – who have either not yet received a second dose OR are less than 6 weeks from second…
The MPN Voice medical advisory committee wants to share with our community the following: Thrombosis associated with low platelets is an exceedingly rare event in patients receiving the Oxford-AZ COVID vaccine and causal relationship remains unclear. There are no confirmed reports of any specific platelet or thrombosis problems in MPN patients relating to the COVID…
After a careful review of the data, UK and International regulatory agencies confirmed yesterday (18.3.21) that the risk of blood clots after COVID vaccination is no greater than that seen in the general population at large. We encourage all MPN patients to get vaccinated and to continue their medications around the time of vaccination. There…
The MPN Voice response to the article published on 11th March 2021 on the BBC news channel regarding a study assessing the effectiveness of the Pfizer vaccine and cancer patients – ‘Cancer patients are much less protected against COVID-19 than other people after one dose of the Pfizer vaccine, the first real-world study in this…
We are aware that many of you are not on the Shielded Patient List and have been informed by your GP surgery that you will not be included in group 4 for the COVID vaccine. To be added to the shielded patient list by your GP you can take a copy of this ‘GP letter…
COVID-19 Vaccine for people with MPNs (updated 11th Jan 2021) Having an MPN and any MPN treatment is not a contraindication to receiving the vaccine. Patients with MPN are in group 4, or higher priority if older. For information regarding prioritisation of vaccination use this link. If you are taking an anticoagulant, e.g., warfarin, rivaroxaban,…
We are extremely excited to announce the launch of our newly designed MPN Voice website on December 4th, 2020. Our previous website, developed in 2014, was done so using a Content Management System (web development software package) that rather frustratingly is to be phased out in February 2021. We have embraced this challenge and taking…
This MPN Voice patients’ forum is hosted by the Guy’s team and will feature updates on both COVID and MPN research, as well as tips as we move forward. We have colleagues from Scotland, Ireland and Wales joining us to reflect regional differences across the UK. You are required to register for this online forum.…