This MPN Voice patients’ forum is hosted by the Guy’s team and will feature updates on both COVID and MPN research, as well as tips as we move forward. We have colleagues from Scotland, Ireland and Wales joining us to reflect regional differences across the UK. You are required to register for this online forum.…
Due to the current situation regarding Coronavirus (COVID-19) we have decided to postpone the forums in Chippenham, Oxford and Galway, we hope to rearrange them later this year. At the present time the forum in Chester on Fri 25th September is still going ahead.
We are very pleased to announce details for four forums to be held in: Chippenham Oxford Galway, Ireland Chester We are currently arranging other forums in locations around the UK, details will be announced as soon as we have them.
Jonathan and Pippa have made it, they have arrived in Plymouth aboard their yacht Sheevra, they have successfully completed the Rolex Fastnet Race 2019. Well done both of you and many congratulations.
Day 4 Tue 6 Aug 19 at 07:30 hrs update from Jonathan and Pippa Ireland in sight. Long long best across rough Celtic sea. Hope to round Fastnet by midday. Track the progress of Sheevra GBR2421 as they round the famous Fastnet Rock and lighthouse. Fastnet Rock, or simply Fastnet is a small islet in the Atlantic Ocean…
Day 2 of The Fastnet Race update from Jonathan and Pippa aboard Sheevra Just in phone range off Salcombe. Frustrating night with 6 hours no wind at all. Now bowling along nicely in force 3. Large pod of dolphins played around the boat earlier, other yachts our size all around us so in the pack.…
The boats taking part in the Fastnet Race are in Cowes and getting ready to set sail on Sat 3 August, including Sheevra, the boat being sailed by Jonathan and Pippa Sheevra, the boat, is a Swan 36 launched in 1969, designed by Sparkman and Stephens (S&S) she is small and old compared to modern…
Saturday 3 August the Fastnet Race has started Update from Jonathan and Pippa – we started the race at 13:00 hrs, in a mass of boats including some awesome machines, should be views on YouTube or the Rolex site yacht Sheevra GBR 2421. Scallywag, one of the fastest and biggest yachts in the world came past us…
Many of you will know Dr Jonathan Wallis who has been a Consultant Haematologist at the Freeman Hospital, Newcastle-upon-Tyne for many years. He has also been a member of the MPN Voice Steering Committee since MPN Voice was first formed as a charity in 2003. Jonathan has recently retired from both roles and we would…
Professor Ruben Mesa, MD, Dr Robyn Scherber MD, and Dr Angela Fleischman MD, of the Mayo Clinic in Arizona invite you to participate in their survey, the NUTRIENT Trial. This survey is open to MPN patients worldwide. Greetings to our myeloproliferative neoplasm (MPN) patients and dear friends! We would like to tell you a little…