This forum is a hybrid all-day event with the choice of attending in-person, or watching the live-stream online via Zoom webinar The venue for attending in-person is: The River Lee Hotel, Western Road, Cork, T12 X2AH, Ireland. Timings: 10 am – 4.30 pm (please note that the live-streaming will start at 10.30 am and will…
When: Fri 9 May 2025, 9 am – 5 pm Where: Queen Elizabeth II Centre, Broad Sanctuary, London, SW1P 3EE Visit us at the HPCC2025, the premier event for the global haematology conditions community, bringing together patients, carers, clinicians, and advocates to share experiences, learn from the latest research, and inspire positive change. Come and…
The vlogcast features Dr Patrick Harrington, Consultant Haematologist, Guy’s & St Thomas’ Hospital, discussing the development and progress of an My MPN Voice app designed to help patients monitor their myeloproliferative neoplasm (MPN). The app, launched in April 2024, has over 300 users who track their symptoms and biometric data using a Withings smartwatch.…
MPN Advocates Network invite you to their upcoming webinar in collaboration with Kartos Therapeutics, featuring Dr. Serge Verstovsek, Kartos’ Chief Medical Officer. During this session, Dr. Verstovsek will provide insights into the POIESIS trial, a new and uniquely designed global Phase 3 study for patients with myelofibrosis. The study will run in 221 hospitals in…
Wednesday 23 April 2025, 4 – 8 pm (arrival/registration from 4 pm with complimentary buffet/refreshments) Venue: The Turnstone Suite, Cambridge Rugby Club & Conference Centre, Ellgia Fields, Grantchester Road, Cambridge, CB3 9ED THIS IS AN IN-PERSON FORUM NOT VIRTUAL/ONLINE You are welcome to attend this forum regardless of where you live or which hospital you…
Are you aged 18-39 and living with a MPN? Join our study to share your experiences and help shape the future of support for young patients. We would be delighted if you would consider taking part in a study focusing specifically on young people’s experiences of living with a diagnosis of MPN. Very few studies…
Tuesday 25 March 2025, 4 – 8 pm (arrival/registration from 4 pm with complimentary buffet/refreshments) Venue: The Holiday Inn Oxford, Peartree Roundabout, Woodstock Road, Oxford OX2 8JD THIS IS AN IN-PERSON FORUM NOT VIRTUAL/ONLINE You are welcome to attend this forum regardless of where you live or which hospital you attend, if you are willing…
We are delighted to announce that the recordings of the Young People and Adolescents with MPNs virtual forum are now available to view. The forum was a collaborative effort with our colleagues in Vivre avec une NMP, using AI-generated avatars for simultaneous transmission of the clinicians’ presentations in French, Spanish and English, alongside other sessions…
The video of the MPN Voice patients’ virtual forum – Post ASH 2024 update – held on 6 Jan 2025, is now available to view. The American Society of Hematology (ASH) conference serves as a pivotal platform for haematology professionals, attracting over 30,000 delegates and showcasing nearly 8,000 unique scientific abstracts, making it the largest…
The MAJIC-PV Study is now completed and the results have been published Researchers wanted to find out how well Ruxolitinib worked compared with the best available therapy as a treatment for people with PV who were at risk of developing blood clots that could lead to a heart attack or stroke. Specifically, the study looked…