I was diagnosed with myelofibrosis (MF) in 2011. I was fortunate to have been diagnosed early because I competed in many difficult ultra distance mountain bike races. I consider the early diagnosis to be ‘fortunate’ because without it, I would have pushed myself very hard in a tough race and would probably have had a…
I was diagnosed with Myelofibrosis when I was 33 years old, just six weeks after the birth of my eldest daughter who is now 14. A few weeks after the birth, I had noticed a lump in my stomach and asked my GP about it. After scans and blood tests and bone marrow biopsies, the…
Michael, my husband, Aged 66 was diagnosed with Myelofibrosis in March 2014 He had a Bells Palsy episode in 2012 and was admitted to hospital as we thought it was a stroke and he has had headaches ever since. The hospital said he had a low platelet count and mentioned Thrombocytosis in a letter to…
My name is Sally and my MPN story began in April 2012 when a visit to my GP resulted in a referral to the haemotology department at my local hospital and my first, (but far from last,) bone marrow biopsy. Myelofibrosis was diagnosed and I was sent home with leaflets and the knowledge this was…
I was first diagnosed with polycythemia vera when I was 46. I am now 74.The discovery of the disease was quite by accident, although I had not been feeling very well. I was due to have a minor operation and a blood test was taken. It was found that my blood was quite thick and…