Jonathon Burkin

I’m Jonathan and my daughter Francesca has an MPN. I’d never heard of it until her diagnosis and hearing the word cancer is one of the hardest things for any parent to get their head around. As a family we are now living with the condition and the change it has brought to our lives;…

Jamie White

My name is Jamie White and I ran the London marathon to fundraise for MPN Voice. Why did you decide to fundraise for MPN Voice? After my diagnosis I found MPN Voice to be such an incredibly helpful resource of information. They fund studies and work with healthcare providers and researchers to improve the lives…

Andrew Livingstone

  My name is Andrew Livingstone, I was diagnosed with ET after a rollercoaster journey of mostly negative emotions, uncertainty and a lot of tests before finally getting a diagnosis in early 2023 that I had ET. I then spent most of last year working with doctors to get my medication levels right. I consider…

Orlagh & Dan Goodwin

As a young person living with an MPN I hope that my story will provide comfort to other young people with MPNs to know that they are not alone and there is support out there for them.   MPN Voice is very close to my heart as I was diagnosed with Essential Thrombocythemia in September…

Heidi Rose Gorringe

“My Mum is my inspiration. I feel helpless watching her struggle with her condition and realised fundraising was my way of supporting the vital research required to find potential cures for her and others like her”. My name is Heidi Rose. I am 31 years old and so far I have raised more than £6,000…

Steve Wilson

  “My wife’s illness inspired me to become a fundraiser myself, it is not something I have ever done before, but I would definitely do it again.” My wife Annette was diagnosed with Polycythaemia Vera, more than fifteen years ago so I was keen to support the charity and the work they do to make…

MPN Voice Recipe Book

MPN Voice is producing a recipe book designed by and for MPN patients and we need your help! Background Diet is so important in contributing to a healthy lifestyle – we all know that we are what we eat. However, emerging research is looking at the relationship between nutrition and MPNs, and the potential benefits…

Design your own event

Your fundraising event can be small or big, as all fundraising adds up to make a huge difference for all of us with our rare blood cancers, myeloproliferative neoplasms (MPNs). If you don’t want to participate in a fundraising event organized by MPN Voice, you can still do your own thing! If you would like…