Registration is now open for the virtual forum – Young People and Adolescents with MPNs – scheduled for Tuesday 21st January 2025, from 6 to 7:30 PM (GMT). The forum will feature presentations in French, Spanish, and English, utilizing AI-generated avatars to enhance the experience. We are thrilled to announce this virtual forum in collaboration…
Date: Sunday 6 April 2025 Start time: TBC Challenge level: moderate Distance: 13.1 miles The event is not your average half marathon. From cultural landmarks and heritage to the city’s quirky and hidden secrets, runners get to explore the capital on a route like no other! The race starts by The Strand, finishes by Downing…
Date: Sunday 27 April 2025 Start time: 9 am Booking fee: £50 Fundraising goal: £2,500 Challenge level: advanced Distance: 26.2 miles The London Marathon is the ultimate running event, with an electric atmosphere and a legendary route from Greenwich Park to Buckingham Palace. You’ll be passing by some of London’s most iconic landmarks, soaking up the…
I’m Jonathan and my daughter Francesca has an MPN. I’d never heard of it until her diagnosis and hearing the word cancer is one of the hardest things for any parent to get their head around. As a family we are now living with the condition and the change it has brought to our lives;…
My name is Jamie White and I ran the London marathon to fundraise for MPN Voice. Why did you decide to fundraise for MPN Voice? After my diagnosis I found MPN Voice to be such an incredibly helpful resource of information. They fund studies and work with healthcare providers and researchers to improve the lives…
My name is Andrew Livingstone, I was diagnosed with ET after a rollercoaster journey of mostly negative emotions, uncertainty and a lot of tests before finally getting a diagnosis in early 2023 that I had ET. I then spent most of last year working with doctors to get my medication levels right. I consider…
As a young person living with an MPN I hope that my story will provide comfort to other young people with MPNs to know that they are not alone and there is support out there for them. MPN Voice is very close to my heart as I was diagnosed with Essential Thrombocythemia in September…
“My Mum is my inspiration. I feel helpless watching her struggle with her condition and realised fundraising was my way of supporting the vital research required to find potential cures for her and others like her”. My name is Heidi Rose. I am 31 years old and so far I have raised more than £6,000…
“My wife’s illness inspired me to become a fundraiser myself, it is not something I have ever done before, but I would definitely do it again.” My wife Annette was diagnosed with Polycythaemia Vera, more than fifteen years ago so I was keen to support the charity and the work they do to make…
Researchers at the University of Oxford are working on a project that could make huge improvements to the diagnosis of myeloproliferative neoplasms (MPNs). Using AI, the research could lead to people getting an accurate diagnosis sooner and could mean that changes in bone marrow are picked up earlier, hopefully this will mean earlier access to…