This forum is a hybrid all-day event with the choice of attending in-person, or watching the live-stream online via Zoom webinar The venue for attending in-person is: The River Lee Hotel, Western Road, Cork, T12 X2AH, Ireland. Timings: 10 am – 4.30 pm (please note that the live-streaming will start at 10.30 am and will…
When: Fri 9 May 2025, 9 am – 5 pm Where: Queen Elizabeth II Centre, Broad Sanctuary, London, SW1P 3EE Visit us at the HPCC2025, the premier event for the global haematology conditions community, bringing together patients, carers, clinicians, and advocates to share experiences, learn from the latest research, and inspire positive change. Come and…
MPN Advocates Network invite you to their upcoming webinar in collaboration with Kartos Therapeutics, featuring Dr. Serge Verstovsek, Kartos’ Chief Medical Officer. During this session, Dr. Verstovsek will provide insights into the POIESIS trial, a new and uniquely designed global Phase 3 study for patients with myelofibrosis. The study will run in 221 hospitals in…
Wednesday 23 April 2025, 4 – 8 pm (arrival/registration from 4 pm with complimentary buffet/refreshments) Venue: The Turnstone Suite, Cambridge Rugby Club & Conference Centre, Ellgia Fields, Grantchester Road, Cambridge, CB3 9ED THIS IS AN IN-PERSON FORUM NOT VIRTUAL/ONLINE You are welcome to attend this forum regardless of where you live or which hospital you…
Tuesday 25 March 2025, 4 – 8 pm (arrival/registration from 4 pm with complimentary buffet/refreshments) Venue: The Holiday Inn Oxford, Peartree Roundabout, Woodstock Road, Oxford OX2 8JD THIS IS AN IN-PERSON FORUM NOT VIRTUAL/ONLINE You are welcome to attend this forum regardless of where you live or which hospital you attend, if you are willing…
Date: Sunday 6 April 2025 Start time: TBC Challenge level: moderate Distance: 13.1 miles The event is not your average half marathon. From cultural landmarks and heritage to the city’s quirky and hidden secrets, runners get to explore the capital on a route like no other! The race starts by The Strand, finishes by Downing…
Date: Sunday 27 April 2025 Start time: 9 am Booking fee: £50 Fundraising goal: £2,500 Challenge level: advanced Distance: 26.2 miles The London Marathon is the ultimate running event, with an electric atmosphere and a legendary route from Greenwich Park to Buckingham Palace. You’ll be passing by some of London’s most iconic landmarks, soaking up the…
I’m Jonathan and my daughter Francesca has an MPN. I’d never heard of it until her diagnosis and hearing the word cancer is one of the hardest things for any parent to get their head around. As a family we are now living with the condition and the change it has brought to our lives;…
My name is Jamie White and I ran the London marathon to fundraise for MPN Voice. Why did you decide to fundraise for MPN Voice? After my diagnosis I found MPN Voice to be such an incredibly helpful resource of information. They fund studies and work with healthcare providers and researchers to improve the lives…
My name is Andrew Livingstone, I was diagnosed with ET after a rollercoaster journey of mostly negative emotions, uncertainty and a lot of tests before finally getting a diagnosis in early 2023 that I had ET. I then spent most of last year working with doctors to get my medication levels right. I consider…