Abseil 2016
On Friday 13th May 2016 some amazing people abseiled 160 feet down the front of St Thomas’ Hospital, London, to raise money for MPN Voice. Between them they raised over £25,000!
Peer ‘buddy’ support
Maz talks about how a buddy really helped her when she was diagnosed with ET
Marilyn, the MPN Voice Fundraising Co-Ordinator
Marilyn tells us in this video why she wanted to be part of the Fundraising Team
Tips on ways to overcome some side effects of PV
Louise shares some tips that have helped her overcome some of the side effects of PV (polycythaemia vera)
Advocacy
Led by Jon Mathias, co-chairperson for MPN Voice and Caroline Thomas an ET patient, we have been looking at ways to best represent patients affected by myeloproliferative neoplasms (MPNs) Advocacy means speaking on behalf of someone or something and in this case, we’re saying that one of MPN Voice’s roles, as our name suggests, is…
Chris and BMT (bone marrow transplant)
Chris shares his experience of a BMT also known as SCT (stem cell transplant).
Being a buddy
Chris talks about being a buddy and giving support to others.
Fundraising for MPN Voice
John took part in the 2015 Virgin London Marathon in aid of MPN Voice
Alisia and using Interferon
Alisia talks about her experience of Interferon and injecting
Update from The 56th American Society of Hematology (ASH) December 2014 meeting held in San Francisco – Part 4
Video 4 – Essential Thrombocythaemia update https://youtu.be/GEJqFqZHk_o