Peer ‘buddy’ support
Maz talks about how a buddy really helped her when she was diagnosed with ET
Marilyn, the MPN Voice Fundraising Co-Ordinator
Marilyn tells us in this video why she wanted to be part of the Fundraising Team
Advocacy
Led by Jon Mathias, co-chairperson for MPN Voice and Caroline Thomas an ET patient, we have been looking at ways to best represent patients affected by myeloproliferative neoplasms (MPNs) Advocacy means speaking on behalf of someone or something and in this case, we’re saying that one of MPN Voice’s roles, as our name suggests, is…
Fundraising for MPN Voice
John took part in the 2015 Virgin London Marathon in aid of MPN Voice
Alisia and using Interferon
Alisia talks about her experience of Interferon and injecting
Update from The 56th American Society of Hematology (ASH) December 2014 meeting held in San Francisco – Part 4
Video 4 – Essential Thrombocythaemia update https://youtu.be/GEJqFqZHk_o
Interview with Rachel
Rachel talks about how having essential thrombocythaemia (ET) has impacted her life and how she’s making a contribution by fundraising.
