Coronavirus and MPNs – An update webinar
An update for MPN patients recorded on 22 May 20. Profs Claire Harrison & Adam Mead, Dr Donal McLornan & CNS Claire Woodley give an update on how COVID-19 is affecting MPN patients.
Coronavirus and MPNs webinar dated 29 April 2020
Consultant haematologists Professor Claire Harrison and Professor Adam Mead and clinical nurse specialists Yvonne Francis and Claire Woodley discuss the Government guidance for people with MPNs. Including questions from the online audience.
Ange W
Hi I’d like to share my story. Hope it helps! After diagnosis I cried. Not because I’d been told I had a chronic blood disorder, but because I was relieved to learn I was not a hypochondriac! Up until then I visited my GP regularly to complain about feeling constantly unwell! I was told I…
Abseil 2016
On Friday 13th May 2016 some amazing people abseiled 160 feet down the front of St Thomas’ Hospital, London, to raise money for MPN Voice. Between them they raised over £25,000!
Peer ‘buddy’ support
Maz talks about how a buddy really helped her when she was diagnosed with ET
Marilyn, the MPN Voice Fundraising Co-Ordinator
Marilyn tells us in this video why she wanted to be part of the Fundraising Team
Tips on ways to overcome some side effects of PV
Louise shares some tips that have helped her overcome some of the side effects of PV (polycythaemia vera)
Advocacy
Led by Jon Mathias, co-chairperson for MPN Voice and Caroline Thomas an ET patient, we have been looking at ways to best represent patients affected by myeloproliferative neoplasms (MPNs) Advocacy means speaking on behalf of someone or something and in this case, we’re saying that one of MPN Voice’s roles, as our name suggests, is…
Chris and BMT (bone marrow transplant)
Chris shares his experience of a BMT also known as SCT (stem cell transplant).
Being a buddy
Chris talks about being a buddy and giving support to others.