In Conversation With … Paul Goode, who talks to Nona about his PV and how it was diagnosed in March 2020. Paul tells Nona that in 2019 he was experiencing itchy skin, he searched the internet for some answers and made some changes to products he was using, but nothing helped. He then received an…
In this interview Dr Patrick Harrington, Consultant Haematologist, Guy’s & St Thomas’ Hospital, talks to Nona about Covid vaccines for MPN patients, he starts off by describing the research he carried out at the start of the Covid pandemic, with Covid being a new condition it was an area that needed a lot of research,…
In Conversation With … Dr Claire Andrews, Consultant Haematologist, St Vincent’s Hospital, Dublin, who spoke to Nona about her role as haematologist in St Vincent’s, taking up the post 2 years ago. She told Nona that there is a large cohort of MPN patients in the hospital, with many different needs. Claire then spoke about…
In Conversation With … Sarah Connolly, Candidate ANP Haematology, University Hospital Galway. This conversation took place at the MPN Voice Patients’ Forum in Galway, held on Sat 24 June 2023. Sarah spoke about taking up her position in January this year as the Candidate Advanced Nurse Practitioner in the haematology department in Galway Hospital, and…
In Conversation With … Annette Matthews, who talks to Nona about her MPN journey, from ET to MF to having a stem cell transplant (SCT) in 2017 and life beyond. Annette tells Nona that once she was told about her transformation she went on a trial for a new drug, which initially did help but…
The month of May featured International Nurses’ Day – a celebration of the contributions and sacrifices made by nurses in the UK and around the world. Nurses’ Day is also an opportunity to raise awareness about the vital work nurses carry out on a daily basis, which is why I am delighted to be joined…
In Conversation With … Dr Arvind Pillai, Consultant Haematologist, The Countess of Chester Hospital, who talks to Nona about Interferon. Nona starts by asking Dr Pillai what it is and how effective it is for treating MPNs. Dr Pillai explains that Interferon used as a treatment, is a manmade copy of the interferon which is…
A very special interview with Nona Baker Co-Chair of MPN Voice and Professor Claire Harrison. In this interview Professor Claire Harrison shares breaking news with up-to-date results from the MAJIC PV Study. Following a recent media article it also clarifies and reassures the importance of existing, very successful therapies such as Hydroxycarbamide and Interferons, which…
Last month, Charlotte, Jamie, and Brad ran the London Marathon in support of MPN Voice. These three amazing runners raised more than £8,000 and if you scroll back through the charity’s recent social media posts, you’ll see photos of each of them proudly wearing their medals over MPN Voice t-shirts. This incredible feat is just…
In Conversation With … Alisia O’Sullivan, ET patient and MPN Voice volunteer, who talks to Nona about her ET and being involved with MPN Voice. Alisia was diagnosed with ET 15 years ago, she tells Nona how her diagnosis came about, she was going to give blood and almost missed going and was very glad…