Consultant haematologists Professor Claire Harrison and Professor Adam Mead and clinical nurse specialists Yvonne Francis and Claire Woodley discuss the Government guidance for people with MPNs. Including questions from the online audience.
Due to the current situation regarding Coronavirus (COVID-19) we have decided to postpone the forums in Chippenham, Oxford and Galway, we hope to rearrange them later this year. At the present time the forum in Chester on Fri 25th September is still going ahead.
Hi I’d like to share my story. Hope it helps! After diagnosis I cried. Not because I’d been told I had a chronic blood disorder, but because I was relieved to learn I was not a hypochondriac! Up until then I visited my GP regularly to complain about feeling constantly unwell! I was told I…
We are very pleased to announce details for four forums to be held in: Chippenham Oxford Galway, Ireland Chester We are currently arranging other forums in locations around the UK, details will be announced as soon as we have them.
Day 2 of The Fastnet Race update from Jonathan and Pippa aboard Sheevra Just in phone range off Salcombe. Frustrating night with 6 hours no wind at all. Now bowling along nicely in force 3. Large pod of dolphins played around the boat earlier, other yachts our size all around us so in the pack.…
The boats taking part in the Fastnet Race are in Cowes and getting ready to set sail on Sat 3 August, including Sheevra, the boat being sailed by Jonathan and Pippa Sheevra, the boat, is a Swan 36 launched in 1969, designed by Sparkman and Stephens (S&S) she is small and old compared to modern…
Saturday 3 August the Fastnet Race has started Update from Jonathan and Pippa – we started the race at 13:00 hrs, in a mass of boats including some awesome machines, should be views on YouTube or the Rolex site yacht Sheevra GBR 2421. Scallywag, one of the fastest and biggest yachts in the world came past us…
CTI Biopharma have issued the top-line results of the PERSIST-2 study, which you can read here… Professor Claire Harrison says of the results: I am very happy to see these positive results for the effectiveness and safety of pacritinib which will now hopefully quickly become more widely available for patients with low blood counts and myelofibrosis.…
On Friday 13th May 2016 some amazing people abseiled 160 feet down the front of St Thomas’ Hospital, London, to raise money for MPN Voice. Between them they raised over £25,000!
Maz talks about how a buddy really helped her when she was diagnosed with ET