I would like to share my story. About 8 years ago, while on holiday in Spain, I started to have daily headaches which I blamed on the stress of being driven to and around, too many busy cities in a fortnight. I also began to experience a flash of bright light when opening my eyes…
Brian 74 writes on 20th February 2014 I was due to have the first of two operations on my knees. Accordingly, I had a pre-op examination three weeks before. On the day after the pre-op I received a phone call from the hospital to say that the operation had been cancelled because I had a very…
Hi my name is Pamela. I am 55 years old and I live in Western Australia. I was diagnosed at the age of 47 after a high platelet level was found in a normal health check. My father was also diagnosed at the same time although he is thirty years my senior. At this time…
I was diagnosed with myelofibrosis (MF) in 2011. I was fortunate to have been diagnosed early because I competed in many difficult ultra distance mountain bike races. I consider the early diagnosis to be ‘fortunate’ because without it, I would have pushed myself very hard in a tough race and would probably have had a…
My name is Helen and I was originally diagnosed with ET in October 1991 when I was 39 years old. It had been a fairly hot summer and I was suffering from increasing pain and discomfort in my feet. The only way of relieving the pain was using what my children referred to as Mum’s…
My name is Gina and I have essential thrombocythaemia (ET). I am one of the rare people to be diagnosed with a myeloproliferative neoplasm (MPN) as a child: I was diagnosed at the age of twelve. Today I’ve completed undergraduate and graduate degrees in the disability sector. I lead a busy and active life working…
09 November 2015 Amanda, 33 and a mother of three children was diagnosed with ET in 2010 and is taking Interferon. Amanda suffered a TIA (mini stroke) in 2014 and as part of her keep fit campaign and to help awareness and raise funds for research decided to run the Hull 10k raising £470.…
21 June 2015 David was diagnosed with ET a few years ago and decided he wanted to get fit and needed a target and decided this would be ‘The Year in the Saddle’. His cycle challenge covered 1,234 miles and impressively he threw in a bit of swimming and running too! David has raised…
18 June 2015 Laura and Peter decided to accept our challenge and as Laura put it, ‘threw themselves off’ the Golden Jubilee Wing of King’s College Hospital London. They raised over £1,093 and Peter’s work also very kindly donated another £700.
16 June 2015 Ruby’s Auntie Rachael has essential thrombocythaemia(ET) and Ruby wanted to do something to show her support and decided to do a bike ride to raise funds for MPN Voice. Ruby and her father Peter rode the 25 mile LIDBA bike ride through the Hampshire lanes, starting and finishing at Liphook which…