Overview – we are looking to hold an in-person forum in London for people with MPNs aged 40 and under, on Saturday 5 September 2026, 1.30 – 6 pm. Following on the success from last year, we are looking to run another Young Patients’ Forum, for MPN patients aged 40 and under only, it is…
Wednesday 29 April 2026, 4 – 8 pm (arrival/registration from 4 pm with complimentary buffet/refreshments) Venue: The Turnstone Suite, Cambridge Rugby Club & Conference Centre, Ellgia Fields, Grantchester Road, Cambridge, CB3 9ED You are welcome to attend this forum regardless of where you live or which hospital you attend, if you are willing to travel…
Tuesday 17 March 2026, 4 – 8 pm (arrival/registration from 4 pm with complimentary buffet/refreshments) Venue The Holiday Inn Oxford, Peartree Roundabout, Woodstock Road, Oxford OX2 8JD THIS IS AN IN-PERSON FORUM NOT VIRTUAL/ONLINE You are welcome to attend this forum regardless of where you live or which hospital you attend, if you are willing…
The video of the MPN Voice patients’ virtual forum, held on 16 Jan 2026, is now available to view. The American Society of Hematology (ASH) conference serves as a pivotal platform for haematology professionals, attracting over 30,000 delegates and showcasing nearly 8,000 unique scientific abstracts, making it the largest gathering in the field. This prestigious…
Maz has been the administrator for MPN Voice for almost 17 years, she talks to Nona about her time with MPN Voice and how she will be spending her retirement indulging in her passion for knitting, sewing, reading and learning new skills like weaving and spinning, and going on adventures with her partner Pete and…
The videos of all sessions recorded at the MPN Voice Living with MPNs Day, held on Saturday 15 November 2025 in London, are now available to view on the MPN Voice YouTube channel.
A vlogcast with Prof Claire Harrison, Guy’s & St Thomas’ Hospital, London and Nona Baker, Co-Chair MPN Voice. This vlogcast highlights key developments in the MPN (Myeloproliferative Neoplasms) field, shared by Professor Claire Harrison, focusing on the American Society of Hematology (ASH) conference and MPN Voice’s 2025 achievements. Key points include: ASH Conference Updates: Advances…
In Conversation with Tobe Aleksander, who updates Nona, one year on from their first conversation, about her participation in the Mithridate Study. This is part 2 of a series of 3 conversations that Tobe and Nona will have about Tobe’s experiences on the study – part 1 enrolling and starting the study; part 2 mid-way…
What matters most to you… and what might we be missing? At MPN Voice, we’re taking a fresh look at how we support people living with myeloproliferative neoplasms (MPNs) — and we need your insight to guide us. Whether you’ve leaned on our resources, joined an event, or simply followed along quietly, your experience matters.…
In this vlogcast, Dr Jack Waldman shares his talk/presentation – Psychological Impact of MPNs – which he presented at the Patients’ Forum held in Inverness on Wednesday 3 September 2025. In this talk, Dr Waldman discusses the psychological impacts of living with myeloproliferative neoplasms (MPN). He covers common emotions people experience after diagnosis, such as…