We recently invited patients with MPNs on treatment, to complete an anonymous survey on a proposed study looking at the effect of changes in mutation levels in MPN patients on treatment. The survey is now closed and we thank you for your participation. Dr Jennifer O’Sullivan and Dr Alesia Khan, the study leads, have sent…
In this vlogcast, Dr Kathleen McHugh shares her talk/presentation – Psychological adjustment after diagnosis of MPN; coping with uncertainty. The talk focuses on coping with a serious illness diagnosis, particularly for newly diagnosed patients and their families. Dr McHugh uses analogies and practical advice to help patients understand and manage their emotional responses to…
Saturday 21 June 2025, 1.30 – 6 pm (arrival/registration 1.30 – 2 pm with complimentary pizzas and soft drinks) Venue: Clifford’s Restaurant, 140 Fetter Lane, London, EC4A 1BT THIS IS AN IN-PERSON FORUM NOT VIRTUAL/ONLINE The Young Patients’ Forum, for MPN patients aged 40 and under only, is an opportunity to meet with other young…
Have You Been Diagnosed with Myelofibrosis? Evolve Fieldwork is inviting United Kingdom patients living with Myelofibrosis to participate in a confidential, one-time, 60-minute online discussion. Your experiences will help improve support, information, and care for the Myelofibrosis community. 80 GBP remuneration as a thank-you for your valuable time. Research conducted within ethical guidelines (Market Research…
Research Funding – MPN Voice has a mission to encourage research for the benefit of MPN patients and has prior and existing research funding commitments, for example support for MOSAICC and for the Mithridate studies. Funding to support either the entirety or part of specific research projects will be provided through specific research funding calls. …
This forum is a hybrid all-day event with the choice of attending in-person, or watching the live-stream online via Zoom webinar The venue for attending in-person is: The River Lee Hotel, Western Road, Cork, T12 X2AH, Ireland. Timings: 10 am – 4.30 pm (please note that the live-streaming will start at 10.30 am and will…
When: Fri 9 May 2025, 9 am – 5 pm Where: Queen Elizabeth II Centre, Broad Sanctuary, London, SW1P 3EE Visit us at the HPCC2025, the premier event for the global haematology conditions community, bringing together patients, carers, clinicians, and advocates to share experiences, learn from the latest research, and inspire positive change. Come and…
The vlogcast features Dr Patrick Harrington, Consultant Haematologist, Guy’s & St Thomas’ Hospital, discussing the development and progress of an My MPN Voice app designed to help patients monitor their myeloproliferative neoplasm (MPN). The app, launched in April 2024, has over 300 users who track their symptoms and biometric data using a Withings smartwatch.…
MPN Advocates Network invite you to their upcoming webinar in collaboration with Kartos Therapeutics, featuring Dr. Serge Verstovsek, Kartos’ Chief Medical Officer. During this session, Dr. Verstovsek will provide insights into the POIESIS trial, a new and uniquely designed global Phase 3 study for patients with myelofibrosis. The study will run in 221 hospitals in…
Wednesday 23 April 2025, 4 – 8 pm (arrival/registration from 4 pm with complimentary buffet/refreshments) Venue: The Turnstone Suite, Cambridge Rugby Club & Conference Centre, Ellgia Fields, Grantchester Road, Cambridge, CB3 9ED THIS IS AN IN-PERSON FORUM NOT VIRTUAL/ONLINE You are welcome to attend this forum regardless of where you live or which hospital you…