October 2013 I was the fittest I had ever been, 10K’s under my belt along with a half marathon and the GreatSouth Run. I felt a little poorly the morning of my last run however I put it down to nerves. I started the race well, set out fast pushing myself harder than I had…
I was diagnosed with polycythaemia ruba vera and essential thrombocythaemia five years ago. This was due to a blood test for something totally different and a complete fluke. A number of friends said I had looked very red and not well and I also had some health issues which I didn’t associate with the condition.…
09 November 2015 Karen, who has PV, is a frequent MPN Voice supporter and fundraiser. As part of her get fitter campaign she has been training hard since April, putting on her trainers, pounding the streets in her MPN Voice T Shirt, raising awareness and doing some serious training for the Shine Walk. Karen raised…
09 November 2015 After many years with Polycythaemia Vera, I gradually became very ill just before Christmas 2010 and was referred to Guy’s Hospital in London for more detailed tests and monitoring after which I was given a new drug. Fortunately this has made an enormous difference to my quality of life. I am enormously…