Alice is 28, has Essential Thrombocythaemia, and has written a series of blogs about being a young person with an MPN.
The month of May featured International Nurses’ Day – a celebration of the contributions and sacrifices made by nurses in the UK and around the world. Nurses’ Day is also…
Last month, Charlotte, Jamie, and Brad ran the London Marathon in support of MPN Voice. These three amazing runners raised more than £8,000 and if you scroll back through the…
MPN Voice has launched a young patient network and on Sunday 2nd April we held our first virtual meeting! It was a fantastic event, and we were thrilled to see…
If you follow MPN Voice on social media, you’ll have seen that the charity has recently announced the first of a series of patients’ forums taking place this year. In…
Living with an MPN means regular appointments with a haematology team for tests and check-ups. It can be daunting facing your first consultation. But even for patients who are frequent…
Basil is the name of my aunty’s labradoodle who came to stay with us last month while she was on holiday. I’ve always wanted a dog, so having Basil visit…
September is blood cancer awareness month. To mark this important date, I wanted to shine a spotlight on the young people within the MPN community who each have their own…
Managing an MPN at school, college or university Although we’re currently in the midst of the summer holiday, the arrival of August inevitably leads to thoughts of the new term…
Fatigue is a common symptom of MPNs and can be a significant challenge for patients. In a leaflet entitled ‘Fighting Fatigue’, MPN Voice lists the many ways in which fatigue…
For some people, MPNs have a minimal impact on their everyday lives. For others, MPNs can cause daily and debilitating symptoms that are difficult to manage and cope with. For…
Bone marrow biopsies. A hot topic at patient forums – online and in-person – and the three words that cause anxiety in many as soon as they’re spoken. Do we…
I am sat with my mum in the Cancer Centre at Guy’s Hospital in London. It is a light and airy building with tall windows and colourful seating areas. Dotted…
Have you ever asked yourself ‘why do I have an MPN?’. I know I have. It’s a question that I am sure appears frequently at point of diagnosis and occasionally…
In the summer of 2020, I started to experience new and debilitating symptoms. My head has always been where my MPN has manifest itself through years of migraine with aura,…
Room 5 is the name of Helena Merriman’s new radio series and podcast for the BBC which features eight stories of life-changing diagnoses. Its title is a nod to the…
If you’re a young patient, I am sure this will be very familiar to you. Googling ‘what is an MPN?’. This might initially be in the build up to, or…
This month I am joined by Gabor who is 30, has PV, and is my unofficial patient buddy. Gabor and I met at my first MPN Voice patient forum at…