This MPN Voice patients’ forum, hosted by the Guy’s team, featured updates on both COVID and MPN research, as well as tips as we move forward.
(all information in the videos is correct as of 1st August 2020 and is subject to change, you are advised to check NHS and government information regularly for updates)
MPN Voice patient’ ‘virtual’ forum – London, held on Saturday 1st August 2020 – view the whole forum in this video.
Welcome and updates from MPN Voice, and Advocacy – Mrs Nona Baker and Mr Jon Mathias, MPN Voice. In this video, Nona Baker introduces MPN Voice and explains what they do to support those with rare blood cancers. Further, Jon Mathias, explains the meaning of advocacy and why it’s a key value in the MPN Voice community.
IMPaCCT of COVID on MPN patients, what have we learned? Prof Lesley Anderson and Dr Lynne Lohfeld. In this video, Prof Lesley Anderson explais the psychosocial effect the COVID-19 pandemic has had on the MPN community. Further, Dr Lynne Lohfeld explains the findings from a survey in which caregivers and patients with either cancer or a pre-cancerous condition describe how they’ve been impacted by COVID-19.
MOSAICC Study update– Prof Mary Francis McMullin. In this video, Prof Mary Francis McMullin talks about the MOSAICC Study which looks specifically into the factors affecting the development of myeloproliferative neoplasms.
Updates from EHA Research and UK Research Agenda– Dr Donal McLornan and Prof Claire Harrison. In this video, Dr Donal McLornan gives us an update on EHA25 data and studies whilst Prof Claire Harrison talks about the current clinical trials prevalent in the MPN community.
COVID research updates – Prof Adam Mead. In this video, Prof Adam Mead, focuses on clinical research on the Covid-19 therapies and vaccines, especially the repurposing of drugs, the process of clinical trials and the danger of misinformation in healthcare.
Regional updates on shielding, including what to expect in a hospital, returning to work/school/COVID-safe: Scotland, Wales, N Ireland and England. In this video, we learn about how each region is going to implement measures to slowly return back to normal life during the Covid-19 pandemic, especially for those who are shielding. (this information is correct as of 1st August 2020 and is subject to change, you are advised to check NHS and government information regularly for updates)
Looking after yourself and bridging back to new normal – Dr Abbie Wickham, Guy’s & St Thomas’ Hospital Psychology Team. In this video, Dr Abbie Wickham discusses the psychological impact of Covid-19 among the MPN community and how to resolve these stresses.
Panel QandA session, the panel answer questions submitted by the audience: chaired by Prof Claire Harrison. Panel: Prof Adam Mead, Dr Donal McLornan, Prof Mary Frances McMullin, Dr Natalie Curto-Garcia, Dr Deepti Radia, Dr Abbie Wickham, Dr Raselle Miller, Claire Woodley, Nona Baker