The 7th Living with MPNs Day, hosted by MPN Voice, was an all-day event held in London, for MPN patients, their family and friends to hear the latest news on trials and treatments from leading experts in the field of MPNs, from the UK, Europe and the USA, specialist haematology nurses and MPN patients. This was a hybrid event with an in-person audience and a global online audience viewing the live stream. Videos of each session are now available to view, more details here.
Programme – view a copy of the programme here
Videos of each session can be viewed on the MPN Voice YouTube channel, click on each link below to view. (please note that the breakout groups were closed groups and were not filmed or live streamed)
Session 1 – Welcome and introduction from MPN Voice – Nona Baker, Co-chair MPN Voice view video
Session 2 – Scientific updates in MPN, Prof Adam Mead, Oxford view video
Session 3 – Patient who has been on a clinical trial, Margaret Cooper view video
Session 4 – MPN targeted immune therapies, Prof Beth Psaila, Oxford view video
Session 5 – Experiences of a young MPN patient, Alice Watson view video
Session 6 – Management of cardiac risk, Dr Patrick Harrington, London view video
Session 7 – Living with MPNs, carer’s perspective, ANP Mary Kelly, Ireland view video
Session 8 – Managing side effects of therapy, Dr Nauman Butt, Liverpool view video
Session 9 – MPN trials in the UK, Prof Claire Harrison, London view video
Session 10 – My journey with ET and my experience of using interferon, Alisia O’Sullivan view video
Session 11 – MPN Voice objectives for 2024 and beyond, Tim Ellis, Chief Financial Officer and Jon Mathias, Co-chair, MPN Voice view video
Session 12 – panel discussion – a moderated discussion with questions from the audience, all clinicians view video
Session 13 – New treatments/targets for MPN, Prof Serge Verstovsek, California view video
MPN Voice cannot be held responsible for any content on YouTube that has not been uploaded by MPN Voice which may cause offence or distress and may contain inappropriate content, any such content should be reported to YouTube.