Presentations from the Living with MPNs Day – Saturday 18th November 2017
Recent scientific advances, including CRISPR – Prof Adam Mead
How do we assess prognosis in MPN – Prof Allesandro M Vannucchi
Bone marrow: what’s in it and how does it work – Dr Bridget Wilkins
MAJIC trial update – Chris Russon, patient speaker
Future plans for MPN care and trials in the UK – Prof Claire Harrison
Patient journey of PV – Eleanor, patient speaker
Patient journey of SCT – Emily Bainbridge, patient speaker
MOSAICC trial update – Prof Mary Frances McMullin
MPN Voice fundraising – Maz Campbell-Drew, MPN Voice
What does MPN Voice do? – Nona Baker, MPN Voice
What I learned from my patients with MPN – Prof Ruben Mesa
Getting the most from your healthcare team – Theresa Peters, Macmillan Haematology CNS
Patient and disease related risk factors for thrombosis – Prof Tiziano Barbui
Living with MPNs – clinician and patient panel discussion – a lively discussion with patients in the audience and online audience and clinicians
Interviews with speakers and patients
Recent scientific advances in MPNs – Prof Adam Mead discusses his presentation
Highlights from the Living with MPNs Day – Prof Claire Harrison shares her highlights
Treating with Ruxolitinib – Prof Claire Harrison discusses treating patients with Ruxolitinib
Working with your healthcare team – Theresa Peters, Macmillan Haematology Clinical Nurse Specialist discusses the importance of working with your healthcare team
How MPN patients and researchers are working together – Prof Ruben Mesa discusses the partnership between patients and the research community
Insights from the myelofibrosis (MF) discussion session – Prof Ruben Mesa shares insights from the discussion
Personal highlights about the day – Prof Ruben Mesa shares his personal highlights about the Living with MPNs day
Who are MPN Voice? – Nona Baker, MPN Voice, provides an introduction to MPN Voice, its activities and the impact it has on patients
Where will we be in 5 years? – Prof Mary Frances McMullin discusses how the diagnostic processes will develop over the next 5 years
What have we learned from the MOSAICC Study so far – Prof Mary Frances McMullin provides an update of the study, looking into the epidemiology of MPNs
Advice for fellow patients – Emily Bainbridge, patient speaker, shares her advice to other MPN patients
The importance of community support – Emily Bainbridge, patient speaker, discusses the importance of having the support of the patient community
Emily’s SCT story – Emily Bainbridge, patient speaker, shares the story of her MPN diagnoses, her treatment journey and how this has impacted her life
Treating with Hydroxycarbamide/Hydroxyurea – Prof Claire Harrison discusses Hydroxycarbamide/Hydroxyurea in the treatment of ET and PV, including the side effects
Eleanor’s PV story – Eleanor, patient speaker, shares her PV diagnosis, treatment journey and how her life has been impacted
Positive impact of MPN Voice – Eleanor, patient speaker, explains how MPN Voice has positively impacted on her life
Eleanor’s fundraising challenge – Eleanor, patient speaker, is challenging herself with a 50 mile swim to raise funds for MPN Voice