The 8th Living with MPNs Day, hosted by MPN Voice, was an all-day event held in London, for MPN patients, their family and friends to hear the latest news on trials and treatments from leading experts in the field of MPNs, from the UK, specialist haematology nurses and MPN patients. This was a hybrid event with an in-person audience and a global online audience viewing the live stream. Videos of each session are now available to view, more details here.
Programme – view a copy of the programme here
Videos of each session can be viewed on the MPN Voice YouTube channel, click on each link below to view. (please note that the breakout groups were closed groups and were not filmed or live streamed)
Session 1 – Thrombosis, Dr Susie Shapiro, Oxford view video
Session 2 – Emotional wellbeing, Dr Lindsay Carpenter, Oxford view video
Session 3 – Looking after your skin, Dr Elizabeth Kulakov, London view video
Session 4– First session Q&A view video
Session 5– Patient Story – My journey with ET, Mary Zazzi view video
Session 6 – Patient Story – Understanding clinical trials from a patient perspective, Adam Spielman view video
Session 7 – MPN SVT, Dr Freya Brown, London view video
Session 8 – What are we learning from the My MPN Voice App, Dr Patrick Harrington, London view video
Session 9 – The My MPN Voice App, Debbie Street, MPN Voice view video
Session 10 – Mithridate trial – why is it important?, Professor Adam Mead, Oxford view video
Session 11 – Skin cancer study, Dr Jon Lambert, London view video
Session 12 – What is the latest on the allele burden, Dr Jen O’Sullivan, London/Oxford view video
Session 13 – Panel discussion with all clinicians – a moderated discussion to include Interferon update, led by Prof Claire Harrison, London view video
Session 14 – MPN Voice Advocacy, Jon Mathias, Co-chair MPN Voice view video
Session 15 – A Glimpse in the Future, Prof Claire Harrison, London view video
MPN Voice cannot be held responsible for any content on YouTube that has not been uploaded by MPN Voice which may cause offence or distress and may contain inappropriate content, any such content should be reported to YouTube.