The 6th Living with MPNs Day, hosted by MPN Voice, was an all-day event held in London, for MPN patients, their family and friends to hear the latest news on trials and treatments from leading experts in the field of MPNs, from the UK, Europe and the USA, specialist haematology nurses and MPN patients. This was a hybrid event with an in-person audience and a global online audience viewing the live stream.
Programme – view a copy of the programme here
Videos of each session can be viewed on the MPN Voice YouTube channel, click on each link below to view. (please note that the breakout groups were closed groups and were not filmed or live streamed)
Session 1 – Welcome to MPN Voice – Nona Baker, Co-Chair, MPN Voice, provides an introduction to the Living with MPNs event and an overview of MPN Voice view video
Session 2 – MPN Prognosis and risks of transformation, Dr Donal McLornan, London view video
Session 3 – My journey from ET to MF, Michele Griffin shares her patient story from her diagnosis of ET which then transformed to MF view video
Session 4 – Special considerations and experiences of young people with MPN, Prof Claire Harrison, London view video
Session 5 – Living with ET: experiences of a young person with a MPN, Alice view video
Session 6 – MPN and COVID, Dr Patrick Harrington, London view video
Session 7 – Management of MPN symptoms, ANP Claire Woodley, London, (presented by Prof Claire Harrison) view video
Session 8 – What do doctors vs patients want from consultations, Prof Mary Frances McMullin, Belfast, and Megan Laird, London view video
Session 9 – Recent clinical and scientific research in MPN, Prof Adam Mead, Oxford view video
Session 10 – Fundraising, Debbie Street view video
Session 11 – a moderated panel discussion with questions from the audience view video
Session 12 – My MPN history, Prof Ruben Mesa, San Antonio, Texas view video
MPN Voice cannot be held responsible for any content on YouTube that has not been uploaded by MPN Voice which may cause offence or distress and may contain inappropriate content, any such content should be reported to YouTube)