Led by Jon Mathias, co-chairperson for MPN Voice and Caroline Thomas an ET patient, we have been looking at ways to best represent patients affected by myeloproliferative neoplasms (MPNs)
Advocacy means speaking on behalf of someone or something and in this case, we’re saying that one of MPN Voice’s roles, as our name suggests, is to speak out on MPN patients’ behalf.
As funding for research and treatment comes under increasing pressure we believe that it will be important for MPN patients to be properly represented and, for that purpose, we have teamed up with similar patient groups in Europe in order that our collective voice will be louder.
