This online forum focussed on updates and latest research in MPNs from the ASH (American Society of Hematology) annual meeting held in Dec 2022. The talks were presented by: Professor…
The video of the MPN Voice patients’ ‘virtual’ forum, held on Thu 12 Jan 23, is now available to view. This online forum focused on Menopause, HRT and MPNs, with…
Antibody and antiviral treatments for people with blood cancer (updated 22 April 2022) People with blood cancer, which does include people with a MPN (who are taking medication for their MPN…
As of 21 February 2022 the JCVI recommends that people aged 12 and above who have blood cancer – MPN – should have five vaccine doses (three primary doses and…
Have you had COVID 19 infection? We need to find out more about how long covid affects people like you – can you help us? We would like to share…
As you will be aware the government has launched a 3rd dose of COVID vaccination for selected patients who may not have mounted an adequate response to the first two…
In this video, Dr Abbie Wickham discusses the psychological impact of Covid-19 among the MPN community and how to resolve these stresses.
An update for MPN patients recorded on 22 May 20. Profs Claire Harrison & Adam Mead, Dr Donal McLornan & CNS Claire Woodley give an update on how COVID-19 is…
Consultant haematologists Professor Claire Harrison and Professor Adam Mead and clinical nurse specialists Yvonne Francis and Claire Woodley discuss the Government guidance for people with MPNs. Including questions from the…
On Friday 13th May 2016 some amazing people abseiled 160 feet down the front of St Thomas’ Hospital, London, to raise money for MPN Voice. Between them they raised over…
Maz talks about how a buddy really helped her when she was diagnosed with ET
Marilyn tells us in this video why she wanted to be part of the Fundraising Team
Louise shares some tips that have helped her overcome some of the side effects of PV (polycythaemia vera)
Chris shares his experience of a BMT also known as SCT (stem cell transplant).
John took part in the 2015 Virgin London Marathon in aid of MPN Voice
Video 4 – Essential Thrombocythaemia update https://youtu.be/GEJqFqZHk_o
Video 3 – Polycythaemia Vera update https://youtu.be/j0H27qFzn00
Video 2 – Myelofibrosis update https://youtu.be/94MrWefhAmk
Video 1 – Treatment and Management of MPNs https://youtu.be/kp6O_GDS-YQ
Dr Ruben Mesa and Dr Veena Fauble, haematologists at the Mayo Clinic discuss bone marrow transplant (BMT) as a treatment option for patients diagnosed with Myelofibrosis. https://youtu.be/DJNQOIkdYQw
Rachel talks about how having essential thrombocythaemia (ET) has impacted her life and how she’s making a contribution by fundraising.
Leading MPN specialists give an overview of the symptoms patients with MF may suffer from.
John, a cyclist, talks about his diagnosis with polycythaemia vera (PV) and how he’s stayed active and fit in spite of PV.
Albert talks about living with myelofibrosis (MF) and taking a JAK2 inhibitor drug currently under trial.