In Conversation With …Michele, who talks to Nona about her MPN journey, from her initial diagnosis of PV 34 years ago, which then transformed to MF. Michele talks about her positive attitude towards her MF, and how Ruxolitinib greatly improved her symptom burden. She also shares some of her top tips, particularly having a buddy, she says that being able to talk to someone who understands what it feels like to live with MF really helps her.
We hope that you enjoyed this conversation, please send feedback and any questions to info@mpnvoice.org.uk. If you have any suggestions for future conversations please let us know.
We would like to thank Michele for taking part in this conversation with Nona. If you would like to hear more about Michele’s MPN journey, view her patient talk on the video of the MPN Voice Patients’ forum held in Cork on Sat 21 May. Click here to view.
MPN Voice, like many charities/organizations, has because of the impact of the COVID pandemic, experienced a decrease in funds being raised and donated and therefore we are asking everyone to be as generous as they can to help us support our ongoing projects supporting the MPN patient and healthcare communities. We would be very grateful for your support with a donation to MPN Voice which you can make via the MPN Voice JustGiving page, thank you.