In Conversation With … Louise Broughton, who talks to Nona about how her PV was diagnosed in 2009 after she had been experiencing symptoms for a number of years, and how she now manages these symptoms, and her top tip for dealing with the ‘itching’ – aquagenic pruritus. They then talk about the buddy support program and why Louise became a buddy, she has been a MPN Voice ‘buddy’ for a number of years and has given support and advice to over 38 people, she says “it is important to have someone to talk to who understands how you are feeling, particularly when you don’t know anyone else who has PV.”
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We hope that you enjoyed this conversation, please send feedback and any questions to info@mpnvoice.org.uk. If you have any suggestions for future conversations please let us know.
We would like to thank Louise for taking part in this conversation with Nona. If you would like to have a buddy for some help and support, or would like to become a buddy to help other people with MPNs, please email buddies@mpnvoice.org.uk for more information.
MPN Voice, like many charities/organizations, has because of the impact of the COVID pandemic, experienced a decrease in funds being raised and donated and therefore we are asking everyone to be as generous as they can to help us support our ongoing projects supporting the MPN patient and healthcare communities. We would be very grateful for your support with a donation to MPN Voice which you can make via the MPN Voice JustGiving page, thank you.
