Saturday 7 June 2025, 10 am – 4.30 pm (arrival/registration from 10 am with complimentary refreshments) Venue The Patrick G Johnston Centre for Cancer Research, Queen’s University Belfast. 97 Lisburn Road, Belfast, BT9 7AE This is an in-person forum, not online/virtual, it will not be live-streamed or recorded. This forum is an opportunity to meet…
We recently invited patients with MPNs on treatment, to complete an anonymous survey on a proposed study looking at the effect of changes in mutation levels in MPN patients on treatment. The survey is now closed and we thank you for your participation. Dr Jennifer O’Sullivan and Dr Alesia Khan, the study leads, have sent…
In this vlogcast, Dr Kathleen McHugh shares her talk/presentation – Psychological adjustment after diagnosis of MPN; coping with uncertainty. The talk focuses on coping with a serious illness diagnosis, particularly for newly diagnosed patients and their families. Dr McHugh uses analogies and practical advice to help patients understand and manage their emotional responses to…
Saturday 21 June 2025, 1.30 – 6 pm (arrival/registration 1.30 – 2 pm with complimentary pizzas and soft drinks) Venue: Clifford’s Restaurant, 140 Fetter Lane, London, EC4A 1BT THIS IS AN IN-PERSON FORUM NOT VIRTUAL/ONLINE The Young Patients’ Forum, for MPN patients aged 40 and under only, is an opportunity to meet with other young…
Have You Been Diagnosed with Myelofibrosis? Evolve Fieldwork is inviting United Kingdom patients living with Myelofibrosis to participate in a confidential, one-time, 60-minute online discussion. Your experiences will help improve support, information, and care for the Myelofibrosis community. 80 GBP remuneration as a thank-you for your valuable time. Research conducted within ethical guidelines (Market Research…
Research Funding – MPN Voice has a mission to encourage research for the benefit of MPN patients and has prior and existing research funding commitments, for example support for MOSAICC and for the Mithridate studies. Funding to support either the entirety or part of specific research projects will be provided through specific research funding calls. …