Friends of Anchor have teamed up with Aberdeen Royal Infirmary to deliver a free to attend, bite-sized education session for MPN patients; family members and clinical staff/HCPs who live and work in the NHS Grampian area, to learn about MPNs, including treatments and how recent research could help with new therapies. Dr Beverley Robertson, Consultant…
PEN (Patient Empowerment Network) is hosting an ELEVATE Myelofibrosis webinar entitled ‘Elevate what you should know about your role in MF treatment and care decisions’ on 11th September 2024 at 1 pm ET (10 am PT, 12 pm CT) please note these timings are for the USA. How can you elevate your overall myelofibrosis care…
PEN (Patient Empowerment Network) is hosting a webinar entitled ‘HCP Roundtable; advancing practice and enhancing MPN care’ on 17th September 2024 at 1 pm ET (10 am PT, 12 pm CT) please note these timings are for the USA How can healthcare providers overcome current challenges to enhance the management and outcomes of myelofibrosis (MF),…
The NCPE, the body that assesses and recommends drugs for use by the health services in Ireland, has recently released initial advice following their assessment of ropeginterferon alfa-2b (Besremi) for the treatment of patients with Polycythaemia Vera. As part of that assessment process MPN Voice made a patient group submission highlighting the benefits of Besremi…
Interferon supplies – Update 19 August 2024 For some time we have been aware that there are international shortages of interferon alpha, in particular pegasys (pegylated interferon alpha 2a). We have been liaising via our medical team with the national pharmacy and procurement teams looking at advice and options. This includes the possibility of using…
In Conversation with Tobe Aleksander, who talks to Nona about her PV, when it was diagnosed and the treatment she has been receiving to manage it and why she decided to take part in the Mithridate Study. This is part 1 of a series of 3 conversations that Tobe and Nona will have about Tobe’s…