The video of the MPN Voice patients’ ‘virtual’ forum, held on Thu 12 Jan 23, is now available to view. This online forum focused on Menopause, HRT and MPNs, with guest speaker Debra Holloway, Nurse Consultant Gynaecology, Guy’s & St Thomas’ NHS Foundation Trust. Also on the panel were Prof Claire Harrison and ANP Claire…
In Conversation With … Maz Campbell-Drew, ET patient and MPN Voice administrator, who talks to Nona about her ET diagnosis in 2003 to the present time, and being the MPN Voice administrator. Maz says she found MPN Voice, or MPD Support as it was then called, in 2008, as she was starting Hydroxycarbamide and wanted…
Living with an MPN means regular appointments with a haematology team for tests and check-ups. It can be daunting facing your first consultation. But even for patients who are frequent flyers, well-seasoned in what to expect, they can be stressful situations for you and your family. Whilst a doctor’s schedule is filled with back-to-back consultations,…