During pregnancy

Careful management of your blood cell levels reduces pregnancy risks. Women who have been diagnosed with myeloproliferative neoplasms (MPNs) need careful management during pregnancy to ensure that both mother and baby remain safe and healthy. Early in pregnancy During the first trimester of pregnancy, the mother’s blood volume increases as her body gets ready to…

Miscarriage

If you have suffered a miscarriage, you may feel grief, frustration and anger. Miscarriage is a very common experience among all women, but the fact that it is common doesn’t lessen the loss and grief that women and their partners can feel. Causes There are many causes of miscarriage, which can include maternal age above…

Planning before pregnancy

If you have been diagnosed with a myeloproliferative neoplasm (MPN) and want to start a family it’s important to plan ahead with your haematologist. If possible, it is best to plan with your haematologist and GP or obstetrician BEFORE becoming pregnant. If you have been taking aspirin only Even if you are not taking medications…

Staying well

You (or your family member) has a myeloproliferative neoplasms (MPN) so you will be wondering if it’s too late to stay well? We assure you the answer is absolutely not, and it’s more important than ever to look after your health. In this video John, who has polycythaemia vera (PV), talks about his diagnosis and…

Know the warning signs

‘Knowledge is power’ and in the case of patients with myeloproliferative neoplasms (MPNs) a sensible step to take in order to maintain optimal health. We strongly advise you and anyone caring for you to play it safe by learning the signs of a deep vein thrombosis (DVT), stroke and heart attack. Deep vein thrombosis A…

Keeping track of symptoms

Your myeloproliferative neoplasm (MPN) is just one part of your whole health picture. As an MPN patient, it’s important to focus on more than just your MPN, and here’s why: MPNs make your blood “sticky,” affecting blood flow. This can put you at a higher risk of thrombotic events such as deep vein thrombosis (DVT),…

Eating well

Everyone is aware of the saying ‘you are what you eat’ and for patients with myeloproliferative neoplasms (MPNs) it is vitally important to pay attention to pursuing as healthy a diet as possible as good nutrition can help to prevent clots. Dr Maria L. Collazo-Clavell of the Mayo Clinic MD (Medical Doctor) contributed these nutrition…

Staying active

Patients with myeloproliferative neoplasms (MPNs) may feel that exercise and staying active is the last thing that they want to do, especially with the extreme fatigue reported by up to 80% of MPN patients. However medical carers in this field have observed that staying active keeps you mobile, improves circulation and reduces fatigue.Here are some…

Reflexology and massage therapy

Reflexology and massage therapy are two complementary therapies that have been used by some patients with a myeloproliferative neoplasm (MPN) to alleviate some of the side effects that may accompany living with a chronic illness; pain, fatigue, low mood, stress, circulatory problems etc. Massage therapy Used for centuries, this is a system of treatment that…