My name is Helen and I was originally diagnosed with ET in October 1991 when I was 39 years old. It had been a fairly hot summer and I was suffering from increasing pain and discomfort in my feet. The only way of relieving the pain was using what my children referred to as Mum’s…
My name is Gina and I have essential thrombocythaemia (ET). I am one of the rare people to be diagnosed with a myeloproliferative neoplasm (MPN) as a child: I was diagnosed at the age of twelve. Today I’ve completed undergraduate and graduate degrees in the disability sector. I lead a busy and active life working…
09 November 2015 Amanda, 33 and a mother of three children was diagnosed with ET in 2010 and is taking Interferon. Amanda suffered a TIA (mini stroke) in 2014 and as part of her keep fit campaign and to help awareness and raise funds for research decided to run the Hull 10k raising £470.…
09 November 2015 Karen, who has PV, is a frequent MPN Voice supporter and fundraiser. As part of her get fitter campaign she has been training hard since April, putting on her trainers, pounding the streets in her MPN Voice T Shirt, raising awareness and doing some serious training for the Shine Walk. Karen raised…
09 November 2015 After many years with Polycythaemia Vera, I gradually became very ill just before Christmas 2010 and was referred to Guy’s Hospital in London for more detailed tests and monitoring after which I was given a new drug. Fortunately this has made an enormous difference to my quality of life. I am enormously…
21 June 2015 David was diagnosed with ET a few years ago and decided he wanted to get fit and needed a target and decided this would be ‘The Year in the Saddle’. His cycle challenge covered 1,234 miles and impressively he threw in a bit of swimming and running too! David has raised…
18 June 2015 Laura and Peter decided to accept our challenge and as Laura put it, ‘threw themselves off’ the Golden Jubilee Wing of King’s College Hospital London. They raised over £1,093 and Peter’s work also very kindly donated another £700.
16 June 2015 Ruby’s Auntie Rachael has essential thrombocythaemia(ET) and Ruby wanted to do something to show her support and decided to do a bike ride to raise funds for MPN Voice. Ruby and her father Peter rode the 25 mile LIDBA bike ride through the Hampshire lanes, starting and finishing at Liphook which…
04 June 2015 Gerry Burns was diagnosed with PV in 2006 and was 53 when he did the run. He writes ‘I was going to do something for Cancer Research as Loretta, my sister, was being treated for lung cancer. I am happy to say she is still with us and very much improved…
09 April 2015 Kayleigh aged 21 was heartbroken when her aunt was recently diagnosed with polycythaemia vera (PV). Kayleigh decided that she wanted to support her aunt as much as possible and has started her MPN Voice Fundraising journey taking part in the WAR Obstacle race, which featured slides, tunnels, rope climbs, mud and…