My name is Gina and I have essential thrombocythaemia (ET). I am one of the rare people to be diagnosed with a myeloproliferative neoplasm (MPN) as a child: I was diagnosed at the age of twelve. Today I’ve completed undergraduate and graduate degrees in the disability sector. I lead a busy and active life working…
09 November 2015 Amanda, 33 and a mother of three children was diagnosed with ET in 2010 and is taking Interferon. Amanda suffered a TIA (mini stroke) in 2014 and as part of her keep fit campaign and to help awareness and raise funds for research decided to run the Hull 10k raising £470.…
09 November 2015 Karen, who has PV, is a frequent MPN Voice supporter and fundraiser. As part of her get fitter campaign she has been training hard since April, putting on her trainers, pounding the streets in her MPN Voice T Shirt, raising awareness and doing some serious training for the Shine Walk. Karen raised…
09 November 2015 After many years with Polycythaemia Vera, I gradually became very ill just before Christmas 2010 and was referred to Guy’s Hospital in London for more detailed tests and monitoring after which I was given a new drug. Fortunately this has made an enormous difference to my quality of life. I am enormously…