Jonathon Burkin
I’m Jonathan and my daughter Francesca has an MPN. I’d never heard of it until her diagnosis and hearing the…
Our vision and desire is that one day there will be a cure and an answer to what causes MPN. Please join MPN Voice or email us at info@mpnvoice.org.uk to learn more.
I’m Jonathan and my daughter Francesca has an MPN. I’d never heard of it until her diagnosis and hearing the…
My name is Jamie White and I ran the London marathon to fundraise for MPN Voice. Why did you decide…
My name is Andrew Livingstone, I was diagnosed with ET after a rollercoaster journey of mostly negative emotions, uncertainty…
As a young person living with an MPN I hope that my story will provide comfort to other young people…
“My Mum is my inspiration. I feel helpless watching her struggle with her condition and realised fundraising was my way…
“My wife’s illness inspired me to become a fundraiser myself, it is not something I have ever done before,…
The language of haematologists is complex. Knowing the lingo can help you find your way in the strange land of myeloproliferative neoplasms (MPNs). When you first learn you have a…
As patients with myeloproliferative neoplasms (MPNs), there’s one thing many of us have in common: we may feel fatigued. But there are solutions available that can give us more energy.…
Some people with myeloproliferative neoplasms (MPNs) feel just fine. If you feel strong, take advantage of this and protect your long-term health by getting active. Not everyone with an MPN…
A coordinated care plan between your haematologist and your obstetrician helps ensure the health of you and your unborn child. Some people are diagnosed with a myeloproliferative neoplasm (MPN) in…
One of the biggest challenges some people face when they have a myeloproliferative neoplasm (MPN) is finding someone to talk with, someone who really understands. Many of us didn’t know…
Myeloproliferative neoplasms (MPNs) are chronic, long-term illnesses, and because they continue through our lives, they can change the way we see ourselves. While many people take their illness in their…
Saturday 7 June 2025, 10 am – 4.30 pm (arrival/registration from 10 am with complimentary refreshments) Venue The Patrick G Johnston Centre for Cancer Research, Queen’s University Belfast. 97 Lisburn Road, Belfast, BT9 7AE This is an in-person forum, not online/virtual, it will not be live-streamed or recorded. This forum is an opportunity to meet…
We recently invited patients with MPNs on treatment, to complete an anonymous survey on a proposed study looking at the…
In this vlogcast, Dr Kathleen McHugh shares her talk/presentation – Psychological adjustment after diagnosis of MPN; coping with uncertainty. The…
Saturday 21 June 2025, 1.30 – 6 pm (arrival/registration 1.30 – 2 pm with complimentary pizzas and soft drinks) Venue: …
Have You Been Diagnosed with Myelofibrosis? Evolve Fieldwork is inviting United Kingdom patients living with Myelofibrosis to participate in a…